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Characteristics of patients contacting a center for undiagnosed and rare diseases
BACKGROUND: Little is known about the characteristics of patients seeking help from dedicated centers for undiagnosed and rare diseases. However, information about their demographics, symptoms, prior diagnoses and medical specialty is crucial to optimize these centers’ processes and infrastructure....
| Autores principales: | , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2016
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4915144/ https://www.ncbi.nlm.nih.gov/pubmed/27328799 http://dx.doi.org/10.1186/s13023-016-0467-2 |