The supportive care needs of parents with a child with a rare disease: results of an online survey

BACKGROUND: Parents caring for a child affected by a rare disease have unmet needs, the origins of which are complex and varied. Our aim was to determine the supportive care needs of parents caring for a child with a rare disease. METHODS: An online survey was developed consisting of 45 questions (1...

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Detalles Bibliográficos
Autores principales: Pelentsov, Lemuel J., Fielder, Andrea L., Laws, Thomas A., Esterman, Adrian J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4955113/
https://www.ncbi.nlm.nih.gov/pubmed/27439905
http://dx.doi.org/10.1186/s12875-016-0488-x

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4955113/
https://www.ncbi.nlm.nih.gov/pubmed/27439905
http://dx.doi.org/10.1186/s12875-016-0488-x

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