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State of rare disease management in Southeast Asia

BACKGROUND: Rare diseases, also referred to as orphan diseases, are characterised by their low prevalence with majority of them are chronically debilitating and life threatening. Given the low prevalence and the widely dispersed but very small patient base for each disease, there may often be a disp...

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Detalles Bibliográficos
Autores principales: Shafie, Asrul Akmal, Chaiyakunapruk, Nathorn, Supian, Azuwana, Lim, Jeremy, Zafra, Matt, Hassali, Mohamed Azmi Ahmad
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4969672/
https://www.ncbi.nlm.nih.gov/pubmed/27484654
http://dx.doi.org/10.1186/s13023-016-0460-9