The personal burden for caregivers of children with phenylketonuria: A cross-sectional study investigating time burden and costs in the UK

INTRODUCTION: Management of phenylketonuria (PKU) is mainly achieved through strict dietary control that aims to limit the intake of phenylalanine (Phe). Adherence to this diet is burdensome due to the need for specially prepared low-Phe meals and regular monitoring of Phe concentrations. A UK cross...

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Detalles Bibliográficos
Autores principales: MacDonald, Anita, Smith, T. Alexander, de Silva, Shamika, Alam, Veronica, van Loon, Jeanni M.T.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2016
Materias:
Research Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5009233/
https://www.ncbi.nlm.nih.gov/pubmed/27622144
http://dx.doi.org/10.1016/j.ymgmr.2016.08.008

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5009233/
https://www.ncbi.nlm.nih.gov/pubmed/27622144
http://dx.doi.org/10.1016/j.ymgmr.2016.08.008

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