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The personal burden for caregivers of children with phenylketonuria: A cross-sectional study investigating time burden and costs in the UK
INTRODUCTION: Management of phenylketonuria (PKU) is mainly achieved through strict dietary control that aims to limit the intake of phenylalanine (Phe). Adherence to this diet is burdensome due to the need for specially prepared low-Phe meals and regular monitoring of Phe concentrations. A UK cross...
| Autores principales: | , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Elsevier
2016
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5009233/ https://www.ncbi.nlm.nih.gov/pubmed/27622144 http://dx.doi.org/10.1016/j.ymgmr.2016.08.008 |