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Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

BACKGROUND: The European Union considers diseases to be rare when they affect less than 5 in 10,000 people. It is estimated that there are between 5000 and 8000 different rare diseases. Consistent with this diversity, the quality of information available on the Web varies considerably. Thus, quality...

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Detalles Bibliográficos
Autores principales: Pauer, Frédéric, Göbel, Jens, Storf, Holger, Litzkendorf, Svenja, Babac, Ana, Frank, Martin, Lührs, Verena, Schauer, Franziska, Schmidtke, Jörg, Biehl, Lisa, Wagner, Thomas OF, Ückert, Frank, Graf von der Schulenburg, Johann-Matthias, Hartz, Tobias
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5016623/
https://www.ncbi.nlm.nih.gov/pubmed/27562540
http://dx.doi.org/10.2196/ijmr.5822