Cargando…
Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases
BACKGROUND: The European Union considers diseases to be rare when they affect less than 5 in 10,000 people. It is estimated that there are between 5000 and 8000 different rare diseases. Consistent with this diversity, the quality of information available on the Web varies considerably. Thus, quality...
Autores principales: | Pauer, Frédéric, Göbel, Jens, Storf, Holger, Litzkendorf, Svenja, Babac, Ana, Frank, Martin, Lührs, Verena, Schauer, Franziska, Schmidtke, Jörg, Biehl, Lisa, Wagner, Thomas OF, Ückert, Frank, Graf von der Schulenburg, Johann-Matthias, Hartz, Tobias |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2016
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5016623/ https://www.ncbi.nlm.nih.gov/pubmed/27562540 http://dx.doi.org/10.2196/ijmr.5822 |
Ejemplares similares
-
Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study
por: Litzkendorf, Svenja, et al.
Publicado: (2018) -
Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study
por: Litzkendorf, Svenja, et al.
Publicado: (2018) -
Telephone health services in the field of rare diseases: a qualitative interview study examining the needs of patients, relatives, and health care professionals in Germany
por: Babac, Ana, et al.
Publicado: (2018) -
Shaping an Effective Health Information Website on Rare Diseases Using a Group Decision-Making Tool: Inclusion of the Perspectives of Patients, Their Family Members, and Physicians
por: Babac, Ana, et al.
Publicado: (2017) -
Rare Diseases on the Internet: An Assessment of the Quality of Online Information
por: Pauer, Frédéric, et al.
Publicado: (2017)