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Testing the Feasibility of a Passive and Active Case Ascertainment System for Multiple Rare Conditions Simultaneously: The Experience in Three US States

BACKGROUND: Owing to their low prevalence, single rare conditions are difficult to monitor through current state passive and active case ascertainment systems. However, such monitoring is important because, as a group, rare conditions have great impact on the health of affected individuals and the w...

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Detalles Bibliográficos
Autores principales: Reichard, Amanda, McDermott, Suzanne, Ruttenber, Margaret, Mann, Joshua, Smith, Michael G, Royer, Julie, Valdez, Rodolfo
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5020310/
https://www.ncbi.nlm.nih.gov/pubmed/27574026
http://dx.doi.org/10.2196/publichealth.5516