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Testing the Feasibility of a Passive and Active Case Ascertainment System for Multiple Rare Conditions Simultaneously: The Experience in Three US States
BACKGROUND: Owing to their low prevalence, single rare conditions are difficult to monitor through current state passive and active case ascertainment systems. However, such monitoring is important because, as a group, rare conditions have great impact on the health of affected individuals and the w...
Autores principales: | Reichard, Amanda, McDermott, Suzanne, Ruttenber, Margaret, Mann, Joshua, Smith, Michael G, Royer, Julie, Valdez, Rodolfo |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5020310/ https://www.ncbi.nlm.nih.gov/pubmed/27574026 http://dx.doi.org/10.2196/publichealth.5516 |
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