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Phenylketonuria patients’ and their parents’ acceptance of the disease: multi-centre study
PURPOSE: Phenylketonuria (PKU) still poses a therapeutic challenge for patients and medical professionals. The aim of the study was to assess both patients’ and their parents’ acceptance of the disease. METHODS: The study included 218 PKU patients and 178 parents of PKU children who were enrolled in...
Autores principales: | , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5065618/ https://www.ncbi.nlm.nih.gov/pubmed/27245777 http://dx.doi.org/10.1007/s11136-016-1326-2 |