The risk of re-identification versus the need to identify individuals in rare disease research

There is a growing concern in the ethics literature and among policy makers that de-identification or coding of personal data and biospecimens is not sufficient for protecting research subjects from privacy invasions and possible breaches of confidentiality due to the possibility of unauthorized re-...

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Detalles Bibliográficos
Autores principales: Hansson, Mats G, Lochmüller, Hanns, Riess, Olaf, Schaefer, Franz, Orth, Michael, Rubinstein, Yaffa, Molster, Caron, Dawkins, Hugh, Taruscio, Domenica, Posada, Manuel, Woods, Simon
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group 2016
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5110051/
https://www.ncbi.nlm.nih.gov/pubmed/27222291
http://dx.doi.org/10.1038/ejhg.2016.52

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5110051/
https://www.ncbi.nlm.nih.gov/pubmed/27222291
http://dx.doi.org/10.1038/ejhg.2016.52

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