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Health-related quality of life and unmet healthcare needs in Huntington’s disease

BACKGROUND: Huntington’s disease (HD) is a rare neurodegenerative disorder with a prevalence of 6 per 100.000. Despite increasing research activity on HD, evidence on healthcare utilization, patients’ needs for healthcare services and Health-Related Quality of Life (HRQoL) is still sparse. The prese...

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Detalles Bibliográficos
Autores principales: van Walsem, Marleen R., Howe, Emilie I., Ruud, Gunvor A., Frich, Jan C., Andelic, Nada
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5220609/
https://www.ncbi.nlm.nih.gov/pubmed/28069034
http://dx.doi.org/10.1186/s12955-016-0575-7