Clinical Practice Guidelines for Rare Diseases: The Orphanet Database

Clinical practice guidelines (CPGs) for rare diseases (RDs) are scarce, may be difficult to identify through Internet searches and may vary in quality depending on the source and methodology used. In order to contribute to the improvement of the diagnosis, treatment and care of patients, Orphanet (w...

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Detalles Bibliográficos
Autores principales: Pavan, Sonia, Rommel, Kathrin, Mateo Marquina, María Elena, Höhn, Sophie, Lanneau, Valérie, Rath, Ana
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2017
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5242437/
https://www.ncbi.nlm.nih.gov/pubmed/28099516
http://dx.doi.org/10.1371/journal.pone.0170365

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5242437/
https://www.ncbi.nlm.nih.gov/pubmed/28099516
http://dx.doi.org/10.1371/journal.pone.0170365

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