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Clinical Practice Guidelines for Rare Diseases: The Orphanet Database
Clinical practice guidelines (CPGs) for rare diseases (RDs) are scarce, may be difficult to identify through Internet searches and may vary in quality depending on the source and methodology used. In order to contribute to the improvement of the diagnosis, treatment and care of patients, Orphanet (w...
Autores principales: | Pavan, Sonia, Rommel, Kathrin, Mateo Marquina, María Elena, Höhn, Sophie, Lanneau, Valérie, Rath, Ana |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5242437/ https://www.ncbi.nlm.nih.gov/pubmed/28099516 http://dx.doi.org/10.1371/journal.pone.0170365 |
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