Epidermolysis bullosa House Austria and Epidermolysis bullosa clinical network: Example of a centre of expertise implemented in a European reference network to face the burden of a rare disease

Accurately addressing the diverse and complex issues of rare diseases (RD) in terms of prevention, recognition, diagnosis, treatment, care and research along key RD specificities, such as great heterogeneity, a limited number of patients, scarcity of relevant knowledge and expertise as well as enorm...

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Detalles Bibliográficos
Autores principales: Laimer, Martin, Pohla-Gubo, Gabriela, Diem, Anja, Prodinger, Christine, Bauer, Johann W, Hintner, Helmut
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Vienna 2016
Materias:
Perspective
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5247537/
https://www.ncbi.nlm.nih.gov/pubmed/27909793
http://dx.doi.org/10.1007/s00508-016-1133-3

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5247537/
https://www.ncbi.nlm.nih.gov/pubmed/27909793
http://dx.doi.org/10.1007/s00508-016-1133-3

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