Impacts of caring for a child with the CDKL5 disorder on parental wellbeing and family quality of life

BACKGROUND: Although research in this area remains sparse, raising a child with some genetic disorders has been shown to adversely impact maternal health and family quality of life. The aim of this study was to investigate such impacts in families with a child with the CDKL5 disorder, a newly recogn...

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Detalles Bibliográficos
Autores principales: Mori, Yuka, Downs, Jenny, Wong, Kingsley, Anderson, Barbara, Epstein, Amy, Leonard, Helen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5248472/
https://www.ncbi.nlm.nih.gov/pubmed/28103894
http://dx.doi.org/10.1186/s13023-016-0563-3

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5248472/
https://www.ncbi.nlm.nih.gov/pubmed/28103894
http://dx.doi.org/10.1186/s13023-016-0563-3

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