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International multiphase mixed methods study protocol to develop a cross-cultural patient-reported outcome instrument for children and young adults with cleft lip and/or palate (CLEFT-Q)

INTRODUCTION: Patient-reported outcome (PRO) instruments should be developed according to rigorous guidelines in order to provide clinically meaningful, scientifically sound measurement. Understanding the methodology behind instrument development informs the selection of the most appropriate tool. T...

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Detalles Bibliográficos
Autores principales: Wong Riff, Karen W Y, Tsangaris, Elena, Goodacre, Tim, Forrest, Christopher R, Pusic, Andrea L, Cano, Stefan J, Klassen, Anne F
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5253569/
https://www.ncbi.nlm.nih.gov/pubmed/28077415
http://dx.doi.org/10.1136/bmjopen-2016-015467