Evaluation of quality of life in adults with neurofibromatosis 1 (NF1) using the Impact of NF1 on Quality Of Life (INF1-QOL) questionnaire

BACKGROUND: Neurofibromatosis 1 (NF1) is an inherited, multi-system, tumour suppressor disorder with variable complications that cause psychological distress and social isolation. The study aim was to develop and validate a disease-specific questionnaire to measure quality of life (QOL) in NF1 that...

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Detalles Bibliográficos
Autores principales: Ferner, Rosalie E, Thomas, Mary, Mercer, Gemma, Williams, Victoria, Leschziner, Guy D, Afridi, Shazia K, Golding, John F
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5307827/
https://www.ncbi.nlm.nih.gov/pubmed/28193237
http://dx.doi.org/10.1186/s12955-017-0607-y

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5307827/
https://www.ncbi.nlm.nih.gov/pubmed/28193237
http://dx.doi.org/10.1186/s12955-017-0607-y

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