Recommendations from the European Working Group for Value Assessment and Funding Processes in Rare Diseases (ORPH-VAL)

Rare diseases are an important public health issue with high unmet need. The introduction of the EU Regulation on orphan medicinal products (OMP) has been successful in stimulating investment in the research and development of OMPs. Despite this advancement, patients do not have universal access to...

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Detalles Bibliográficos
Autores principales: Annemans, Lieven, Aymé, Ségolène, Le Cam, Yann, Facey, Karen, Gunther, Penilla, Nicod, Elena, Reni, Michele, Roux, Jean-Louis, Schlander, Michael, Taylor, David, Tomino, Carlo, Torrent-Farnell, Josep, Upadhyaya, Sheela, Hutchings, Adam, Le Dez, Lugdivine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Position Statement
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5345269/
https://www.ncbi.nlm.nih.gov/pubmed/28283046
http://dx.doi.org/10.1186/s13023-017-0601-9

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5345269/
https://www.ncbi.nlm.nih.gov/pubmed/28283046
http://dx.doi.org/10.1186/s13023-017-0601-9

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