Cargando…
Review of 11 national policies for rare diseases in the context of key patient needs
Rare diseases collectively exert a global public health burden in the severity of their manifestations and the total number of people they afflict. For many patients, considerable barriers exist in terms of access to appropriate care, delayed diagnosis and limited or non-existing treatment options....
| Autores principales: | , , , |
|---|---|
| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2017
|
| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5374691/ https://www.ncbi.nlm.nih.gov/pubmed/28359278 http://dx.doi.org/10.1186/s13023-017-0618-0 |