A qualitative study of perceptions of meaningful change in spinal muscular atrophy

BACKGROUND: This qualitative study examined how individuals with Spinal Muscular Atrophy (SMA), their caregivers, and clinicians defined meaningful change, primarily in the Type II and non-ambulant type III patient populations, associated with treatment of this condition. In addition, we explored pa...

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Detalles Bibliográficos
Autores principales: McGraw, Sarah, Qian, Ying, Henne, Jeff, Jarecki, Jill, Hobby, Kenneth, Yeh, Wei-Shi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5381033/
https://www.ncbi.nlm.nih.gov/pubmed/28376816
http://dx.doi.org/10.1186/s12883-017-0853-y

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5381033/
https://www.ncbi.nlm.nih.gov/pubmed/28376816
http://dx.doi.org/10.1186/s12883-017-0853-y

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