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Clinical patient registry recruitment and retention: a survey of patients in two chronic disease registries
BACKGROUND: The collection of routine clinical data in the setting of research registries can serve an important role in understanding real world care. However, relatively little is known about the patient experience in registries, motivating us to survey patients enrolled in two chronic disease reg...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5392954/ https://www.ncbi.nlm.nih.gov/pubmed/28415991 http://dx.doi.org/10.1186/s12874-017-0343-3 |