Cargando…

Clinical patient registry recruitment and retention: a survey of patients in two chronic disease registries

BACKGROUND: The collection of routine clinical data in the setting of research registries can serve an important role in understanding real world care. However, relatively little is known about the patient experience in registries, motivating us to survey patients enrolled in two chronic disease reg...

Descripción completa

Detalles Bibliográficos
Autores principales:	Solomon, Daniel H., Shadick, Nancy A., Weinblatt, Michael E., Frits, Michelle, Iannaccone, Christine, Zak, Agnes, Korzenik, Joshua R.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2017
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5392954/ https://www.ncbi.nlm.nih.gov/pubmed/28415991 http://dx.doi.org/10.1186/s12874-017-0343-3

Ejemplares similares

Drug safety analyses in a rheumatoid arthritis registry: application of different approaches regarding timing of exposure and confounder measurement
por: Solomon, Daniel H., et al.
Publicado: (2017)

Association of hemoglobin levels with radiographic progression in patients with rheumatoid arthritis: an analysis from the BRASS registry
por: Shadick, Nancy, et al.
Publicado: (2023)

Pain persists in DAS28 rheumatoid arthritis remission but not in ACR/EULAR remission: a longitudinal observational study
por: Lee, Yvonne C, et al.
Publicado: (2011)

Association of Low Bone Mineral Density with Anti-Citrullinated Protein Antibody Positivity and Disease Activity in Established Rheumatoid Arthritis: Findings from a US Observational Cohort
por: Ahmad, Harris A., et al.
Publicado: (2018)

Validity of the Nurses’ health study physical activity questionnaire in estimating physical activity in adults with rheumatoid arthritis
por: Quinn, Thomas, et al.
Publicado: (2017)

Multibiomarker disease activity score and C-reactive protein in a cross-sectional observational study of patients with rheumatoid arthritis with and without concomitant fibromyalgia
por: Lee, Yvonne C., et al.
Publicado: (2016)

Sustained rheumatoid arthritis remission is uncommon in clinical practice
por: Prince, Femke HM, et al.
Publicado: (2012)

The Association Between Reduction in Inflammation and Changes in Lipoprotein Levels and HDL Cholesterol Efflux Capacity in Rheumatoid Arthritis
por: Liao, Katherine P., et al.
Publicado: (2015)

Interference of tumor necrosis factor inhibitor treatments on soluble tumor necrosis factor receptor 2 levels in rheumatoid arthritis
por: Yang, Nicole, et al.
Publicado: (2019)

The Impact of Exercise, Lifestyle, and Clinical Factors on Perceived Cognitive Function in Patients with Rheumatoid Arthritis: Results from a Prospective Cohort Study
por: Shadick, Nancy A., et al.
Publicado: (2019)

Incidence and Predictors of Dyspnea on Exertion in a Prospective Cohort of Patients With Rheumatoid Arthritis
por: Sparks, Jeffrey A., et al.
Publicado: (2019)

Data‐Driven Patient Clustering and Differential Clinical Outcomes in the Brigham and Women’s Rheumatoid Arthritis Sequential Study Registry
por: Curtis, Jeffrey R., et al.
Publicado: (2021)

Meaning of patient global assessment when joint counts are low in rheumatoid arthritis
por: Felson, David, et al.
Publicado: (2022)

Recruiting to preclinical Alzheimer's disease clinical trials through registries
por: Grill, Joshua D.
Publicado: (2017)

Effects of Achieving Target Measures in Rheumatoid Arthritis on Functional Status, Quality of Life, and Resource Utilization: Analysis of Clinical Practice Data
por: Alemao, Evo, et al.
Publicado: (2016)

Supplementing Claims Data with Electronic Medical Records to Improve Estimation and Classification of Rheumatoid Arthritis Disease Activity: A Machine Learning Approach
por: Feldman, Candace H., et al.
Publicado: (2019)

PTPN22.6, a Dominant Negative Isoform of PTPN22 and Potential Biomarker of Rheumatoid Arthritis
por: Chang, Hui-Hsin, et al.
Publicado: (2012)

Baseline Characteristics and Treatment Patterns of the Patients Recruited to the China Registry of Hepatitis B
por: Shan, Shan, et al.
Publicado: (2019)

A new method for estimating under-recruitment of a patient registry: a case study with the Ohio Registry of Amyotrophic Lateral Sclerosis
por: Li, Meifang, et al.
Publicado: (2022)

An external validation study reporting poor correlation between the claims-based index for rheumatoid arthritis severity and the disease activity score
por: Desai, Rishi J, et al.
Publicado: (2015)

Findings of Recruitment and Retention Survey – Consultants’ Perspective
por: Mahmood, Sajid, et al.
Publicado: (2023)

Association of Seropositivity and Mortality in Rheumatoid Arthritis and the Impact of Treatment With Disease‐Modifying Antirheumatic Drugs: Results From a Real‐World Study
por: Alemao, Evo, et al.
Publicado: (2020)

Survey of Potential Cancer Registry Items to Enhance the Usefulness of Cancer Registry Data
por: Boo, Yoo-Kyung, et al.
Publicado: (2019)

Predicting amyloid status using self‐report information from an online research and recruitment registry: The Brain Health Registry
por: Ashford, Miriam T., et al.
Publicado: (2020)

Guideline Adherence and Registry Recruitment of Congenital Primary Hypothyroidism: Data from the German Registry for Congenital Hypothyroidism (HypoDok)
por: Thomann, Julia, et al.
Publicado: (2021)

Two-step recruitment process optimizes retention in FLEX clinical trial
por: Standiford, Debra A., et al.
Publicado: (2018)

Disease Burden and Patient-Reported Outcomes Among Ulcerative Colitis Patients According to Therapy at Enrollment Into CorEvitas’ Inflammatory Bowel Disease Registry
por: Cross, Raymond K, et al.
Publicado: (2022)

The Validity of Intracerebral Hemorrhage Diagnoses in the Danish Patient Registry and the Danish Stroke Registry
por: Hald, Stine Munk, et al.
Publicado: (2020)

CPAnet Registry—An International Chronic Pulmonary Aspergillosis Registry
por: Laursen, Christian B., et al.
Publicado: (2020)

Machine learning approaches to predicting amyloid status using data from an online research and recruitment registry: The Brain Health Registry
por: Albright, Jack, et al.
Publicado: (2021)

Audience segmentation as a strategy for enhancing the use of research registries for recruiting patients into clinical trials
por: Flood-Grady, Elizabeth, et al.
Publicado: (2019)

The Impact of Diagnosis on Job Retention: A Danish Registry-Based Cohort Study
por: Espersen, Rasmus, et al.
Publicado: (2015)

Promoting Retention: African American Older Adults in a Research Volunteer Registry
por: Hall, LaToya N., et al.
Publicado: (2016)

Recruitment in online research for COPD: leveraging social media and research registries
por: Paige, Samantha R., et al.
Publicado: (2019)

Disease and patient characteristics in NP-C patients: findings from an international disease registry
por: Patterson, Marc C, et al.
Publicado: (2013)

PRospective REgistry of PAtients in REfractory cardiogenic shock—The PREPARE CardShock registry
por: von Lewinski, Dirk, et al.
Publicado: (2022)

Examining the National Representativeness of the Axon Registry: A Neurology-Specific Patient Registry
por: Wilson, Andrew M., et al.
Publicado: (2023)

Peripartum issues in the inflammatory arthritis patient: A survey of the RAPPORT registry
por: Dissanayake, T. D., et al.
Publicado: (2020)

The disease course of Castleman disease patients with fatal outcomes in the ACCELERATE registry
por: Fajgenbaum, David C., et al.
Publicado: (2022)

Pediatric cancer registries in Latin America: the case of Argentina’s pediatric cancer registry
por: Fedorovsky, Johanna Michelle, et al.
Publicado: (2017)

Cannot write session to /tmp/vufind_sessions/sess_01tqiiena402mf29pc12o69s2o