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Information ranks highest: Expectations of female adolescents with a rare genital malformation towards health care services
BACKGROUND: Access to highly specialized health care services and support to meet the patient’s specific needs is critical for health outcome, especially during age-related transitions within the health care system such as with adolescents entering adult medicine. Being affected by an orphan disease...
Autores principales: | , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5398506/ https://www.ncbi.nlm.nih.gov/pubmed/28426677 http://dx.doi.org/10.1371/journal.pone.0174031 |