Information ranks highest: Expectations of female adolescents with a rare genital malformation towards health care services

BACKGROUND: Access to highly specialized health care services and support to meet the patient’s specific needs is critical for health outcome, especially during age-related transitions within the health care system such as with adolescents entering adult medicine. Being affected by an orphan disease...

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Detalles Bibliográficos
Autores principales: Simoes, Elisabeth, Sokolov, Alexander N., Kronenthaler, Andrea, Hiltner, Hanna, Schaeffeler, Norbert, Rall, Katharina, Ueding, Esther, Rieger, Monika A., Wagner, Anke, Poesch, Leonie S., Baur, Marie-Christin, Kittel, Judith, Brucker, Sara Y.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2017
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5398506/
https://www.ncbi.nlm.nih.gov/pubmed/28426677
http://dx.doi.org/10.1371/journal.pone.0174031

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