Parental Experiences of Raising a Child With Medium Chain Acyl-CoA Dehydrogenase Deficiency

Newborn screening enabling early diagnosis of medium chain acyl-CoA dehydrogenase deficiency (MCADD) has dramatically improved health outcomes in children with MCADD. Achieving those outcomes depends on effective management by parents. Understanding parental management strategies and associated anxi...

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Detalles Bibliográficos
Autores principales: Piercy, Hilary, Machaczek, Katarzyna, Ali, Parveen, Yap, Sufin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2017
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5419063/
https://www.ncbi.nlm.nih.gov/pubmed/28516128
http://dx.doi.org/10.1177/2333393617707080

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5419063/
https://www.ncbi.nlm.nih.gov/pubmed/28516128
http://dx.doi.org/10.1177/2333393617707080

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