Characterization and utilization of an international neurofibromatosis web-based, patient–entered registry: An observational study

The neurofibromatoses (neurofibromatosis type 1, neurofibromatosis type 2 and schwannomatosis) are rare disorders having clinical manifestations that vary greatly from patient to patient. The rarity and variability of these disorders has made it challenging for investigators to identify sufficient n...

Descripción completa

Detalles Bibliográficos
Autores principales: Seidlin, Mindell, Holzman, Robert, Knight, Pamela, Korf, Bruce, Rangel Miller, Vanessa, Viskochil, David, Bakker, Annette
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2017
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5482445/
https://www.ncbi.nlm.nih.gov/pubmed/28644838
http://dx.doi.org/10.1371/journal.pone.0178639

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5482445/
https://www.ncbi.nlm.nih.gov/pubmed/28644838
http://dx.doi.org/10.1371/journal.pone.0178639

Ejemplares similares