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The patient’s experience of primary ciliary dyskinesia: a systematic review

BACKGROUND: Primary ciliary dyskinesia (PCD) is a rare genetic disorder characterised by progressive sinopulmonary disease, with symptoms starting soon after birth. The aim of this study is to critically review, analyse, and synthesise the literature in order to understand the experiences of patient...

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Detalles Bibliográficos
Autores principales: Behan, Laura, Rubbo, Bruna, Lucas, Jane S., Dunn Galvin, Audrey
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5548843/
https://www.ncbi.nlm.nih.gov/pubmed/28361274
http://dx.doi.org/10.1007/s11136-017-1564-y