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The patient’s experience of primary ciliary dyskinesia: a systematic review
BACKGROUND: Primary ciliary dyskinesia (PCD) is a rare genetic disorder characterised by progressive sinopulmonary disease, with symptoms starting soon after birth. The aim of this study is to critically review, analyse, and synthesise the literature in order to understand the experiences of patient...
Autores principales: | Behan, Laura, Rubbo, Bruna, Lucas, Jane S., Dunn Galvin, Audrey |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5548843/ https://www.ncbi.nlm.nih.gov/pubmed/28361274 http://dx.doi.org/10.1007/s11136-017-1564-y |
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