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Substitute consent to data sharing: a way forward for international dementia research?

A deluge of genetic and health-related data is being generated about patients with dementia. International sharing of these data accelerates dementia research. Seeking consent to data sharing is a challenge for dementia research where patients have lost or risk losing legal capacity. The laws of mos...

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Detalles Bibliográficos
Autores principales: Thorogood, Adrian, Deschênes St-Pierre, Constance, Knoppers, Bartha Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5570693/
https://www.ncbi.nlm.nih.gov/pubmed/28852560
http://dx.doi.org/10.1093/jlb/lsw063