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Substitute consent to data sharing: a way forward for international dementia research?
A deluge of genetic and health-related data is being generated about patients with dementia. International sharing of these data accelerates dementia research. Seeking consent to data sharing is a challenge for dementia research where patients have lost or risk losing legal capacity. The laws of mos...
Autores principales: | Thorogood, Adrian, Deschênes St-Pierre, Constance, Knoppers, Bartha Maria |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5570693/ https://www.ncbi.nlm.nih.gov/pubmed/28852560 http://dx.doi.org/10.1093/jlb/lsw063 |
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