Public and patient involvement in needs assessment and social innovation: a people-centred approach to care and research for congenital disorders of glycosylation

BACKGROUND: Public and patient involvement in the design of people-centred care and research is vital for communities whose needs are underserved, as are people with rare diseases. Innovations devised collectively by patients, caregivers, professionals and other members of the public can foster tran...

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Detalles Bibliográficos
Autores principales: de Freitas, Cláudia, dos Reis, Vanessa, Silva, Susana, Videira, Paula A., Morava, Eva, Jaeken, Jaak
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5615629/
https://www.ncbi.nlm.nih.gov/pubmed/28950866
http://dx.doi.org/10.1186/s12913-017-2625-1

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5615629/
https://www.ncbi.nlm.nih.gov/pubmed/28950866
http://dx.doi.org/10.1186/s12913-017-2625-1

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