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Validation of QUALAS-T, a health-related quality of life instrument for teenagers with spina bifida

INTRODUCTION: We aimed to develop and validate a self-reported QUAlity of Life Assessment in Spina bifida for Teenagers (QUALAS-T). MATERIAL AND METHODS: We drafted a 46-question pilot instrument using a patient-centered comprehensive item generation/refinement process. A group of 13–17 years olds w...

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Detalles Bibliográficos
Autores principales: Szymański, Konrad M., Misseri, Rosalia, Whittam, Benjamin, Casey, Jessica T., Yang, David Y., Raposo, Sonia-Maria, King, Shelly J., Kaefer, Martin, Rink, Richard C., Cain, Mark P.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Polish Urological Association 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5656361/
https://www.ncbi.nlm.nih.gov/pubmed/29104796
http://dx.doi.org/10.5173/ceju.2017.1195