Standardised Outcomes in Nephrology—Polycystic Kidney Disease (SONG-PKD): study protocol for establishing a core outcome set in polycystic kidney disease

BACKGROUND: Autosomal dominant polycystic kidney disease (ADPKD) is the most common potentially life threatening inherited kidney disease and is responsible for 5–10% of cases of end-stage kidney disease (ESKD). Cystic kidneys may enlarge up to 20 times the weight of a normal kidney due to the growt...

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Autores principales: Cho, Yeoungjee, Sautenet, Benedicte, Rangan, Gopala, Craig, Jonathan C., Ong, Albert C. M., Chapman, Arlene, Ahn, Curie, Chen, Dongping, Coolican, Helen, Kao, Juliana Tze-Wah, Gansevoort, Ron, Perrone, Ronald, Harris, Tess, Torres, Vicente, Pei, York, Kerr, Peter G., Ryan, Jessica, Gutman, Talia, Howell, Martin, Ju, Angela, Manera, Karine E., Teixeira-Pinto, Armando, Hamiwka, Lorraine A., Tong, Allison
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
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Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5701447/
https://www.ncbi.nlm.nih.gov/pubmed/29169385
http://dx.doi.org/10.1186/s13063-017-2298-4