Health-related quality of life among adults with diverse rare disorders

BACKGROUND: Twenty-five to 30 million Americans live with a rare disease (RD) and share challenges unique to RD. The majority of research on RDs has focused on etiology, treatment and care, while the limited health-related quality of life (HRQL) research has been restricted to single RDs, small samp...

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Detalles Bibliográficos
Autores principales: Bogart, Kathleen R., Irvin, Veronica L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5719717/
https://www.ncbi.nlm.nih.gov/pubmed/29212508
http://dx.doi.org/10.1186/s13023-017-0730-1

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5719717/
https://www.ncbi.nlm.nih.gov/pubmed/29212508
http://dx.doi.org/10.1186/s13023-017-0730-1

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