Balancing the local and the universal in maintaining ethical access to a genomics biobank

BACKGROUND: Issues of balancing data accessibility with ethical considerations and governance of a genomics research biobank, Generation Scotland, are explored within the evolving policy landscape of the past ten years. During this time data sharing and open data access have become increasingly impo...

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Detalles Bibliográficos
Autores principales: Heeney, Catherine, Kerr, Shona M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5745812/
https://www.ncbi.nlm.nih.gov/pubmed/29282045
http://dx.doi.org/10.1186/s12910-017-0240-7

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5745812/
https://www.ncbi.nlm.nih.gov/pubmed/29282045
http://dx.doi.org/10.1186/s12910-017-0240-7

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