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Balancing the local and the universal in maintaining ethical access to a genomics biobank
BACKGROUND: Issues of balancing data accessibility with ethical considerations and governance of a genomics research biobank, Generation Scotland, are explored within the evolving policy landscape of the past ten years. During this time data sharing and open data access have become increasingly impo...
| Autores principales: | , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2017
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5745812/ https://www.ncbi.nlm.nih.gov/pubmed/29282045 http://dx.doi.org/10.1186/s12910-017-0240-7 |