Quality of life in mucopolysaccharidoses: construction of a specific measure using the focus group technique

OBJECTIVE: To describe the perceptions of patients, their caregivers, and their healthcare providers to the development of a new specific instrument for assessment of the quality of life (QoL) in patients with mucopolysaccharidoses (MPS) using a qualitative focus group (FG) design. FGs were held in...

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Detalles Bibliográficos
Autores principales: Oliveira, M. R., Schwartz, I., Costa, L. S., Maia, H., Ribeiro, M., Guerreiro, L. B., Acosta, A., Rocha, N. S.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Research Note
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5769464/
https://www.ncbi.nlm.nih.gov/pubmed/29334993
http://dx.doi.org/10.1186/s13104-018-3157-4

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5769464/
https://www.ncbi.nlm.nih.gov/pubmed/29334993
http://dx.doi.org/10.1186/s13104-018-3157-4

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