APPLaUD: access for patients and participants to individual level uninterpreted genomic data

BACKGROUND: There is a growing support for the stance that patients and research participants should have better and easier access to their raw (uninterpreted) genomic sequence data in both clinical and research contexts. MAIN BODY: We review legal frameworks and literature on the benefits, risks, a...

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Detalles Bibliográficos
Autores principales: Thorogood, Adrian, Bobe, Jason, Prainsack, Barbara, Middleton, Anna, Scott, Erick, Nelson, Sarah, Corpas, Manuel, Bonhomme, Natasha, Rodriguez, Laura Lyman, Murtagh, Madeleine, Kleiderman, Erika
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5816450/
https://www.ncbi.nlm.nih.gov/pubmed/29454384
http://dx.doi.org/10.1186/s40246-018-0139-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5816450/
https://www.ncbi.nlm.nih.gov/pubmed/29454384
http://dx.doi.org/10.1186/s40246-018-0139-5

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