Cargando…
TRAPPED - an insight into two sisters’ struggle to access treatment for a rare genetic disease
Medical student training is largely focused on acquiring knowledge of diseases and their management, which may leave one with a naïve perception of what is achievable in practice, particularly in the field of rare diseases. Tumour Necrosis Factor Receptor Associated Periodic Syndrome (TRAPS) is a ra...
| Autor principal: | |
|---|---|
| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2018
|
| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5828179/ https://www.ncbi.nlm.nih.gov/pubmed/29482660 http://dx.doi.org/10.1186/s13023-018-0774-x |