Genuine participation in participant-centred research initiatives: the rhetoric and the potential reality

The introduction of Web 2.0 technology, along with a population increasingly proficient in Information and Communications Technology (ICT), coupled with the rapid advancements in genetic testing methods, has seen an increase in the presence of participant-centred research initiatives. Such initiativ...

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Detalles Bibliográficos
Autores principales: Feeney, Oliver, Borry, Pascal, Felzmann, Heike, Galvagni, Lucia, Haukkala, Ari, Loi, Michele, Nordal, Salvör, Rakic, Vojin, Riso, Brígida, Sterckx, Sigrid, Vears, Danya
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2017
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5849703/
https://www.ncbi.nlm.nih.gov/pubmed/29064073
http://dx.doi.org/10.1007/s12687-017-0342-4

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5849703/
https://www.ncbi.nlm.nih.gov/pubmed/29064073
http://dx.doi.org/10.1007/s12687-017-0342-4

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