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Reconstructing normality following the diagnosis of a childhood chronic disease: does “rare” make a difference?
Living with a childhood chronic disease can be challenging, especially if the diagnosis involves a rare condition. This study sought to elucidate how the diagnosis of a rare disease, as compared to a common, chronic condition, may influence maternal experiences of childhood illness. We conducted fac...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Springer Berlin Heidelberg
2018
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5851707/ https://www.ncbi.nlm.nih.gov/pubmed/29335841 http://dx.doi.org/10.1007/s00431-017-3085-7 |