Difficulties in the diagnosis and treatment of rare diseases according to the perceptions of patients, relatives and health care professionals

OBJECTIVES: The aim of this study is to present a survey of vulnerabilities and to suggest approaches for the treatment of rare diseases according to the perceptions of a group of affected individuals, patient association representatives and health care professionals. METHODS: The focus group techni...

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Detalles Bibliográficos
Autores principales: Lopes, Marcos Thomazin, Koch, Vera Hermina, Sarrubbi-Junior, Vicente, Gallo, Paulo Rogério, Carneiro-Sampaio, Magda
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Hospital das Clínicas da Faculdade de Medicina da Universidade de São Paulo 2018
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5866403/
https://www.ncbi.nlm.nih.gov/pubmed/29641803
http://dx.doi.org/10.6061/clinics/2018/e68

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5866403/
https://www.ncbi.nlm.nih.gov/pubmed/29641803
http://dx.doi.org/10.6061/clinics/2018/e68

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