Development of the Impact of Juvenile Metachromatic Leukodystrophy on Physical Activities scale

BACKGROUND: Metachromatic leukodystrophy (MLD) is a rare disease with three forms based on the age at onset of signs and symptoms. The objective of this study was to develop a caregiver-reported clinical outcome assessment that measures impairments in physical functioning related to activities of da...

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Detalles Bibliográficos
Autores principales: Brown, T. Michelle, Martin, Susan, Fehnel, Sheri E., Deal, Linda S.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2018
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5934920/
https://www.ncbi.nlm.nih.gov/pubmed/29757307
http://dx.doi.org/10.1186/s41687-018-0041-x

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5934920/
https://www.ncbi.nlm.nih.gov/pubmed/29757307
http://dx.doi.org/10.1186/s41687-018-0041-x

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