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Development of the Impact of Juvenile Metachromatic Leukodystrophy on Physical Activities scale
BACKGROUND: Metachromatic leukodystrophy (MLD) is a rare disease with three forms based on the age at onset of signs and symptoms. The objective of this study was to develop a caregiver-reported clinical outcome assessment that measures impairments in physical functioning related to activities of da...
Autores principales: | Brown, T. Michelle, Martin, Susan, Fehnel, Sheri E., Deal, Linda S. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5934920/ https://www.ncbi.nlm.nih.gov/pubmed/29757307 http://dx.doi.org/10.1186/s41687-018-0041-x |
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