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Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts

Currently, researchers have to apply separately to individual biobanks if they want to carry out studies that use samples and data from multiple biobanks. This article analyzes the access governance arrangements of the original five biobank members of the Biobank Standardisation and Harmonisation fo...

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Detalles Bibliográficos
Autores principales: Kaye, Jane, Briceño Moraia, Linda, Mitchell, Colin, Bell, Jessica, Bovenberg, Jasper Adriaan, Tassé, Anne-Marie, Knoppers, Bartha Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Mary Ann Liebert, Inc. 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5939924/
https://www.ncbi.nlm.nih.gov/pubmed/27183185
http://dx.doi.org/10.1089/bio.2015.0124