Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives

OBJECTIVES: Spinal muscular atrophy (SMA) has profound implications for patients and families. The aim of the present study was to gain insights into the effects caring for a child with SMA has on the costs incurred by families caring for a child with SMA from carer perspectives to identify gaps in...

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Detalles Bibliográficos
Autores principales: Farrar, Michelle A, Carey, Kate A, Paguinto, Sarah-Grace, Chambers, Georgina, Kasparian, Nadine A
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2018
Materias:
Neurology
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5988080/
https://www.ncbi.nlm.nih.gov/pubmed/29794098
http://dx.doi.org/10.1136/bmjopen-2017-020907

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5988080/
https://www.ncbi.nlm.nih.gov/pubmed/29794098
http://dx.doi.org/10.1136/bmjopen-2017-020907

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