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“Will she live a long happy life?” Parents' concerns for their children with Fontan circulation

BACKGROUND: Families of children at the worst end of the congenital heart disease endure a significant burden which is often not clearly delineated in the clinical literature. We examined the greatest concerns of parents whose children have a Fontan circulation. METHODS: Parents (N = 107) of childre...

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Detalles Bibliográficos
Autores principales: du Plessis, Karin, Peters, Rebecca, King, Ingrid, Robertson, Kirsty, Mackley, Jonathan, Maree, Rachel, Stanley, Tracy, Pickford, Louise, Rose, Brian, Orchard, Matthew, Stewart, Helen, d'Udekem, Yves
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5988481/
https://www.ncbi.nlm.nih.gov/pubmed/29876506
http://dx.doi.org/10.1016/j.ijcha.2018.02.008