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Ethical concerns on sharing genomic data including patients’ family members

BACKGROUND: Platforms for sharing genomic and phenotype data have been developed to promote genomic research, while maximizing the utility of existing datasets and minimizing the burden on participants. The value of genomic analysis of trios or family members has increased, especially in rare diseas...

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Detalles Bibliográficos
Autores principales: Takashima, Kyoko, Maru, Yuichi, Mori, Seiichi, Mano, Hiroyuki, Noda, Tetsuo, Muto, Kaori
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6006763/
https://www.ncbi.nlm.nih.gov/pubmed/29914459
http://dx.doi.org/10.1186/s12910-018-0310-5