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Ethical concerns on sharing genomic data including patients’ family members
BACKGROUND: Platforms for sharing genomic and phenotype data have been developed to promote genomic research, while maximizing the utility of existing datasets and minimizing the burden on participants. The value of genomic analysis of trios or family members has increased, especially in rare diseas...
Autores principales: | Takashima, Kyoko, Maru, Yuichi, Mori, Seiichi, Mano, Hiroyuki, Noda, Tetsuo, Muto, Kaori |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6006763/ https://www.ncbi.nlm.nih.gov/pubmed/29914459 http://dx.doi.org/10.1186/s12910-018-0310-5 |
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